Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!
BloodStream
English - June 10, 2022 07:00 - 1 hour - 167 MB - ★★★★★ - 38 ratingsAlternative Health Health & Fitness advocacy biotech bleedingdisorders haemophilia healthcare hematology hemofilia hemophilia inhibitors insurance Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.
Show Notes:
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Recent novel therapy news:
CSL Behring gene therapy makes comeback after hold for FDA priority review
BioMarin delays planned FDA filing for hemophilia gene therapy
FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment
Presenting Sponsor: Takeda.
Visit bleedingdisorders.com to learn more.
The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com
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