Legislative wins and losses & CDC’s Aditi Kantipuly
BloodStream
English - January 13, 2023 08:00 - 38 minutes - 53.4 MB - ★★★★★ - 38 ratingsAlternative Health Health & Fitness advocacy biotech bleedingdisorders haemophilia healthcare hematology hemofilia hemophilia inhibitors insurance Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
A legislative package was approved at the end of 2022 with several wins and several disappointments for the rare disease community–we talk about it! Also, we welcome Aditi Kantipuly, a Research Collaborator for the CDC for a chat about health equity. Plus, Jessica Lauren Richmond is back with The Well, a segment featuring 5 steps to make your new year’s resolutions stick.
Show Notes:
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As part of H.R. 2617, Congress delivered several crucial programs and reforms that are important to the rare disease community — measures that NORD and the rare community fought for and will help speed efforts to develop effective therapies and expand access to care.
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