Dr. K talks with caregiving expert Carol Levine, Director of the Families and Health Care Project at the United Hospital Fund of New York and author of "Planning for Long-Term Care for Dummies." They discuss how family caregivers can better manage many of their top challenges, including managing the healthcare system and working with paid home aides. They also discuss NextStepInCare.org, which provides free practical guides for patients and families.

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In This Episode:

Dr. K talks with caregiving expert Carol Levine, Director of the Families and Health Care Project at the United Hospital Fund of New York and author of “Planning for Long-Term Care for Dummies.” They discuss:

Carol’s experience managing care for her husband for 17 years, after he was badly injured in a car accident

Top challenges that family caregivers face, based on Carol’s work doing surveys and focus groups with family caregivers

Tips on finding, hiring, and working with a paid caregiver in the home

The problem of doctors underestimating the work that family caregivers do

How families can manage the cost of hiring caregivers, and how to manage family conflicts that may arise

Why dealing with the healthcare system is a common source of frustration for families, and how NextStepInCare.org helps families

What society can do to better support family caregivers

Related episode: 

008 – Interview: Helping Families with Memory Loss: The Care to Plan Online Tool

Related Resources:

NextStepInCare.org

NSIC Guide: Working with Home Health Aides

NSIC Guide: HIPAA: Questions and Answers for Family Caregivers

AARP Report: Home Alone, Family Caregivers Providing Complex Chronic Care

National Family Caregiver Support Program, Administration on Aging

National Respite Locator

What Japan Can Teach Us About Long-Term Care

AARP Public Policy Institute: Valuing the Invaluable

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