Alopecia Life
138 episodes - English - Latest episode: about 2 months ago - ★★★★★ - 37 ratingsAlopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.
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Episodes
S5E9 Gut Healting & How to Reclaim Your Health with Lisa Taylor
February 29, 2024 08:00 - 44 minutes - 30.5 MBWelcome to this episode of Alopecia Life. For those who have listened to past episodes, you may remember the 3 healthy habits to have in our lifestyle toolbelt that Integrative Nutrition and Gut Health Coach, Lisa Taylor, provided to all of us to start and continue a self-healing journey. Lisa is back to share about her upcoming FREE masterclass in March, along with her 12 week Alopecia Warrior Self-Healing collective group program. I believe we are becoming more empowered with our health. ...
S5E8 Operation Hat Drop, with Allison & Anthony D'Alessandro
January 11, 2024 08:00 - 26 minutes - 18.2 MBThank you for joining us for this first Alopecia Life episode of 2024. It's a new year, and I'm so excited to have a feel-good story for you today. Our guests today are Allison & Anthony. I found out about this fabulous family within a group where Allison shared about the hat collection that was growing exponentially after they started a small ask of their friends and family to help support Anthony. Due to the number of hats they were receiving, she knew she wanted to find more kids who migh...
S5E7 How to Share Your Story & Have It Make An Impact with your College Essay, with Jill Shulman
December 07, 2023 08:00 - 51 minutes - 35.1 MBWelcome to this episode of Alopecia Life. A few months ago, I was talking with Kylie, another CAP mentor, who expressed an interest in helping college-bound kids share their alopecia story in the essay portion of their college application. I thought it was a fantastic idea, and got to work looking for the perfect podcast guest to speak on this topic, and found Jill Shulman. Jill is the author of College Admissions Cracked: Saving Your Kid (and Yourself) From the Madness. She is an establish...
S5E6 Boundaries Around Holidays and Gatherings
November 23, 2023 08:00 - 3 minutes - 2.49 MBWelcome to this episode of Alopecia Life. The time for gatherings is here. Holidays, work parties, get-togethers with friends and family that "should" be fun. But...sometimes these gatherings turn into colossal upsets due to well-meaning or misguided family and friends. Of course, there does tend to be one total ass-hat who likes to take up space too. The early days of being diagnosed can be increasingly difficult with all of these events that we're expected to attend. Over the years, I'...
S5E5 Seasons Of Change with Skye Waggoneer
November 09, 2023 08:00 - 26 minutes - 18 MBThank you for listening to today's podcast. Back in September of this year, I re-interviewed Skye from season 2 of Alopecia Life to get an update on how things had changed for Ohna from when she was 9 until now at 13 with regards to school. Back then, It was 2020, and we were talking about back-to-school at a very strange and uncertain time. Today's interview is with Skye only. Ohna has given us the go-ahead and trust to share about her experience through Skye's own perspective. As we move i...
S5E4 Freedom Wigs - It's Not Only a Name, It's a Feeling! with Deanna Beattie
October 26, 2023 07:00 - 54 minutes - 37.6 MBWelcome to this episode of Alopecia Life. Today's guest is Deanna Beattie of Freedom Wigs. Freedom Wigs has a unique origin story and an even more unique continuation of that story. As I was talking with Deanna, I discovered more about her as a mother, about someone who has a commitment and passion to provide a superior experience with Freedom Wigs, and takes into consideration knowledge, empathy, and respect for what goes into the process of making something so personal when someone is look...
S5E3 Adventures For Alopecia - Where the Journey Ends, with Skylar Weaver
October 05, 2023 07:00 - 17 minutes - 11.7 MBWelcome to this episode of Alopecia Life. Four years ago, Skylar Weaver set off on his mission to raise alopecia awareness while traveling through central America. As with most adventures and intentions, things come up that cause us to change direction, take a new route, and that's just what happened 7 months into the trip. It was great catching up with Skylar to see what the trip accomplished, not only for his own wellbeing, but also for the families and groups he met throughout the trip. L...
S5E2 Alopecia Awareness What it Means to Spread Your Sparkle with Eryn Barclay
September 21, 2023 07:00 - 24 minutes - 17.1 MBWelcome to this episode of Alopecia Life. It's the month of September, and as many of you know - it's Alopecia Awareness Month. Today's guest is Eryn Barclay. She is a wife and mother, and works full-time for the Walt Disney Company in the entertainment department as a cosmetologist. Eryn shares with us about the origin of Lou & Doe. How it started and the significance of what it has grown into in the last year. Sometimes, we wonder what we can do during alopecia awareness month, and this is...
S5E1 504 Plans - How & When to Ask for Accommodations Around Alopecia with Dr. Sherri Barrow
September 07, 2023 07:00 - 45 minutes - 31.3 MBWelcome to Season 5 of Alopecia Life. In this first episode, our guest is Dr. Sherri Barrow. Each season, around this time of year we talk about back-to-school and how we can make the school experience a good one for our kids. Looking back as a kid who lived with alopecia areata since the age of 7, I know I needed more support in school. I'm sure many of you would agree based on your own experience - there was very little to no support. Some things have changed since then. There are more re...
S4E28 Season 5 & Alopecia Awareness Month Starting Next Week
August 31, 2023 07:00 - 1 minute - 1.25 MBNext week will be the beginning of Season 5 for Alopecia Life and the beginning of Alopecia Awareness Month. I'm excited to bring you episodes with new and continuing conversations around living with alopecia areata. Thank you so much for listening over the last 4 years. I look forward to another season filled with amazing guests and topics that help us all understand there is a community of support out there who understands. Support the show Alopecia Life provides free resources for school ...
S4E27 Stories from Camp with Angelique, Abbee & Baylee
August 24, 2023 07:00 - 31 minutes - 21.3 MBWelcome to this episode of Alopecia Life. This is one of the last ones for the summer of our Stories from Camp series. It was super cool to tune into the sounds of nature again - kids playing a game, birds chirping, and the hum of dragonfly wings. Today's guest is Baylee, and she is being interviewed by Angelique and Abbee who do a great job of asking questions on the fly. Baylee has the sweetest personality, and provides some very touching insight into what it's like in school, along with a...
S4E26 Back-to-School with Alopecia Recap #2
August 17, 2023 07:00 - 1 minute - 1.04 MBWelcome to this next episode of Alopecia Life and the Back-to-School recap #2. This is 2020's episode where I interview Artist and Animator, Lydia Hibbert and Kerry Montgomery, the Psychological Wellbeing lead from Alopecia UK where we chat about the importance of raising awareness in a way that kids can relate to. Through their Talking About Alopecia animation, which features voices of children living with alopecia, alopecia awareness has been able to make a difference in a strong and uniqu...
S4E25 Back-To-School with Alopecia Recap #1
August 10, 2023 17:00 - 1 minute - 787 KBIt's that time of year again for kids as they head back to school. Going back to school is often one of the biggest pain points for families, especially if their child has been diagnosed during summer break. This is the first recap of 4 of our back-to-school episodes set up to remind us that even though we cannot control our child's hair loss, we do have the capability of making the education experience better for them, no matter how old they are. These episodes are all setting up for the r...
S4E24 Teen Talk with Abbee Tolman
August 03, 2023 07:00 - 33 minutes - 23.1 MBWelcome to this episode of Alopecia Life. Today's second episode of Teen Talk is with Abbee Tolman. As she shares her story with us, you may feel memories pop up around sharing about your own hair loss, friendships that have been gained and lost, and the strong sense of self that comes from living with alopecia. I feel lucky to be invited in to listen to Abbee's story, and I have a feeling you will be too. Let's welcome Abbee to Alopecia Life. Thank you so much for sharing your time with A...
S4E23 The Pathway from Devastation to Acceptance - One Dad's Journey After His Daughter's Alopecia Diagnosis
July 06, 2023 07:00 - 31 minutes - 21.5 MBThank you so much for listening to this episode of Alopecia Life. We are sitting outside on a perfect day in the Pacific Northwest at the second annual kids CAP camp out on Orcas Island. Today's guest is Brandon James.He is dad to Kennedi and AJ. Brandon's thoughts about Kennedi being viewed as different than other kids was at the top of his mind after hearing she had been diagnosed with alopecia. He's here to share the not-so-easy beginnings, and the journey to embracing Kennedi's alopecia ...
S4E22 Leadership & Alopecia - How the B.A.L.D. Method Can Make a Difference, with Joyel Crawford
June 22, 2023 07:00 - 26 minutes - 18.3 MBWelcome to this episode of Alopecia Life. Today's guest is Joyel Crawford. Some of you may have already watched her recent Tedx Talk. Others may have purchased her book "Show Your Ask" - Using Your Voice to Advocate for Yourself and Your Career. It's very cool to see the many ways her work in leadership also relates to her alopecia diagnosis. Check out the show notes for all the awesome ways Joyel is impacting the career and leadership world. Thanks for joining us today for this fun convers...
S4E21 Stories from Camp with Abbee, Angelique & Kennedi
June 08, 2023 07:00 - 20 minutes - 14.2 MBWelcome to this episode of Alopecia Life. I'm super excited to have two guest hosts, Abbee and Angelique interviewing Kennedi for today's stories from camp. I wanted to have teenagers interview the younger kids who felt comfortable sharing about their alopecia experience to gain a different perspective from them as a group. It couldn't have gone better, especially for it being their first time. Last episode, you got to know Angelique a little bit better, and Abbee's episode will be released ...
S4E20 Teen Talk with Angelique Staggs
May 25, 2023 07:00 - 32 minutes - 22.2 MBWelcome to this first episode of Alopecia Life - Teen Talk with our guest, Angelique Staggs. I am excited to have the perspective of teenagers on the podcast to share what living with alopecia looks and feels like for them. Angelique is one of the two guest hosts who interviewed children at CAP camp at the end of May, and I look forward to sharing those episodes with you very soon. Please welcome Angelique to Alopecia Life. Thank you for sharing your time with Angelique and me today. Feel ...
S4E19 Alopecia Podcasts - What's New & Exciting
May 04, 2023 07:00 - 3 minutes - 2.33 MBWelcome to this episode of Alopecia Life. Some of you have been here from the beginning, and others have just recently discovered this podcast. Right now, I'm excited to be at the tailend of the 4th season. When I started, there were no podcasts dedicated specifically to alopecia that had any true longevity. It was so important to open up conversations about alopecia so that all of you would feel connected to the guests and the topics that surround alopecia. Alopecia Life has always focused ...
S4E18 - Toxic - A Father's Crusade to Heal His Family & His Home, with Jamie Way
April 20, 2023 07:00 - 57 minutes - 39.8 MBOur guest today is Jamie Way. Last year, I noticed Jamie posting quite a bit about his young daughter's alopecia and how they were doing a deep dive into her health. We actually interviewed last year, and the recording ended up not being usable. It took us another year to record, and with that a lot more information has surfaced that we hope will be helpful to those of you wishing to explore some potential triggers. Their journey has not been an easy one, and listening to the interview rea...
S4E17 Author Spotlight - EL PANZÓN, with Marciano Flores and Mathew Flores
March 30, 2023 07:00 - 28 minutes - 19.3 MBWelcome to this episode of Alopecia Life. In past seasons, I've interviewed authors of books with characters who have alopecia or are written by authors with alopecia. Today, in this author spotlight, I'm talking with Marciano Flores and Mathew Flores. You may recognize Marciano's voice from an episode we did last month, and he is here to share about his first of hopefully many chapter books that feature his family and upbringing, and includes a character who is living with alopecia. I'll le...
S4E16 How to Share Your Alopecia Story Through Video, with Rebecca Saunders
March 16, 2023 07:00 - 30 minutes - 20.7 MBWelcome to this episode of Alopecia Life. Thank you so much for sharing your time with me and today's guest, Rebecca Saunders. Rebecca is known as video ninja in the digital world, and the impact she has made in this space has grown exponentially in the last few years. Today, she shares with us her alopecia story, along with some great advice about living authentically and "leaning into the uniqueness of you." Of course, there are some fantastic tips on how to share your own alopecia story t...
S4E15 Culture, Traditions, and Coming of AgeThrough Multiple Generations of Alopecia
March 02, 2023 08:00 - 58 minutes - 40 MBWelcome to Alopecia Life. Throughout generations, families are often presented with opportunities to change the way things were done before, by having a similar experience present itself. Many times, it's handled in the same exact way, and other times it's handled in a completely different way based on new information, and a sense that there could be a more positive outcome if we make new decisions. Today, I have an amazing family who not only share a common bond of living with alopecia thro...
S4E14 Clean Conscious Bald Beauty - Toxin-Free Living with Alyssa Carpenter
February 16, 2023 08:00 - 31 minutes - 21.5 MBWelcome to this episode of Alopecia Life. Today, our guest is Alyssa Carpenter. On social media, you may know her as Clean Conscious Bald Beauty. Alyssa is a proud wife, entrepreneur, and alopecia warrior of over 10 years. As both an Alopecia Awareness and Clean Beauty Advocate, she uses her platform to share her passion for learning & educating about unnecessary toxins in our everyday world. After getting a diagnosis of alopecia, many of us jump to cleaning up our diet, looking to eliminate...
S4E13 Alopecia, Leukemia & Lymphoma, and Team Another Chance with Summer Yang
February 02, 2023 08:00 - 18 minutes - 12.9 MBWelcome to this episode of Alopecia Life. Today's guest is Summer Yang. When Summer developed alopecia in kindergarten, she also met one of her best friends. Years later, when they were both experiencing hair loss - one from alopecia, and the other from leukemia - their friendship became even stronger from their shared experiences. Summer is here today to share about her alopecia, along with the Student Visionaries of the Year Campaign to support the Leukemia & Lymphoma Society. Her campaign...
S4E12 How to Attract & Rebuild Activated Relationships with Love Evolution Coach, Erica Vargas
January 19, 2023 08:00 - 44 minutes - 30.9 MBThank you so much for sharing your time with Alopecia Life today. Our guest is Erica Vargas. Erica is a relationship expert who went on a journey of self-love, self-discovery, and self-worth to support people to reveal and claim their heart's truest desire. Although this particular episode is lined up right near Valentine's day, love and relationships is a topic that resonates with us any time of the year. Throughout the episode, Erica shares about the importance of activating healthy relat...
S4E11 Lizzo & a Little Bit of Glitter - What Else Does it Take to Decide, This is the Day? with Natalie Diasti
January 05, 2023 08:00 - 45 minutes - 31.5 MBWelcome to this first Alopecia Life episode of 2023. Today, our guest is Natalie Diasti. We talk about one bold experience that many of us have already gone through, and one that so many others are still wanting to have, but just don't quite know how. The first time we choose to publicly be out in the world without anything on our head. The questions of, "What will people think?" or "How will they respond?" are all still there, but so is the perfect timing that sometimes calls to each of us....
S4E10HappyHolidays2022
December 24, 2022 06:00 - 1 minute - 1.07 MBIt's the end of 2022. However you celebrate this holiday season, I'm wishing you happy memories and good company. Alopecia Life is taking a short break until January, and I look forward to sharing new episodes with you then. Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alo...
S4E9 The Iron Protocol Part 2, with Caitlyn Hartigan
December 01, 2022 08:00 - 34 minutes - 23.8 MBWelcome to Alopecia Life and part 2 of the Iron Protocol interview with Caitlyn Hartigan. Many of you have already gone over to the FB page to read the protocols, check your symptoms, understand what lab work to ask for, and how to read that lab work. Others have started looking at the information, and even more have started to wonder what ferritin has to do with their fatigue and anxiety. Thank you for hanging tight as we waited to release this next episode. At the end of the last one, Cait...
S4E8 The Iron Protocol Part 1, with Caitlyn Hartigan
November 17, 2022 08:00 - 38 minutes - 26.5 MBWelcome to this 2 part series of Alopecia Life around the topic of iron deficiency. A couple years ago, living with "low iron" caught up with me. I found myself unable to do simple tasks like walk my dog, go up a flight of stairs without feeling like my heart was beating out of my chest, and I had an incessant cough that wouldn't go away. I soon discovered that my Iron had dipped to an alarmingly low level, but there was more to the story than I realized. I didn't fit the puzzle pieces toget...
S4E7 Wrestling, Acting & Alopecia - Discovering What Makes Him Who He Is, with Angel Rosario, Jr.
November 03, 2022 07:00 - 37 minutes - 26 MBWelcome to this episode of Alopecia Life. Thank you for spending your time with me and our guest, Angel Rosario, Jr., today. Angel was born and raised in Chicago. Both of his parents were born and raised in Puerto Rico. He started acting back in 2015, and credits his distinct look and presence that have given him amazing opportunities to alopecia. This interview was filled with a lot of laughter, moments of seriousness, insights about coping mechanisms while living with alopecia, and so much...
S4E6 How Nutrition, Cellular Health & Lifestyle Modifications Can Help Change our Autoimmunity Outcome, with Autoimmunity Nutritionist VJ Hamilton
October 20, 2022 07:00 - 25 minutes - 17.3 MBToday's guest, VJ Hamilton, shares about her journey with multiple autoimmune conditions, and how it led her to pursue a combined passion of science, nutrition, and helping others as an autoimmunity nutritionist. The conversation took a couple twists and turns around the gut, cellular health, and an online community where others with autoimmunity can share their tips, tricks and bounce ideas off of each other. *More about VJ: After 25 years of suffering from multiple autoimmune condition...
S4E5 (IM) PERFEKT with Jannica Olin
October 06, 2022 07:00 - 21 minutes - 15.1 MBToday's guest is Jannica Olin. You may remember her from a bonus episode back in Season 1. I am so glad to have her back, talking about an exciting opportunity where she will perform her one-woman show, (IM) Perfekt next week in NY City. Jannica is a Swedish born actress and TEDx speaker, and is known as Hollywood's Bald Blonde. I'm super excited to share this interview with you, and to have you learn more about all Jannica is doing to encourage her audience to examine disempowering thoughts...
S4SE1 What is the Alopecia Roadmap Course
September 29, 2022 07:00 - 5 minutes - 3.79 MBMany of you have been listening to Alopecia Life since the beginning, and others have just started sharing time with us. Thank you so much for being here. Each guest that comes onto the show is meant to give you, as a listener, some insight into their alopecia experience, and to let you know you're not alone. I love hearing back from those of you who have mentioned how helpful a certain conversation with a podcast guest has been, or that hearing about a product we mentioned has been a game...
S4E4 Makeup & How it Provides a Powerful Outlet for Endless Self-Expression, Creativity & Empowerment with Abby Wren
September 22, 2022 07:00 - 36 minutes - 25 MBIt's still Alopecia Awareness Month, and what better way to spend it than with our guest, Abby Wren, today. Abby is a creative makeup artist and outspoken advocate for inclusivity throughout the beauty industry, media, and beyond. For those of you who have seen her work, you might already know that her signature bald look has become her iconic canvas as she transforms herself into colorful, mind-blowing creations and characters. I won't share much more with you here in the intro because I ...
S4E3 Alopecia Connection: Men, Boys & Alopecia, with Frank Cornine
September 08, 2022 07:00 - 20 minutes - 14.4 MBWelcome to this episode of Alopecia Life. September is Alopecia Awareness Month, and today's guest is Frank Cornine. Frank was a teenager when his hair started falling out. Affter a decade, he found a local support group, and soon realized there wasn't something that specifically shed light on alopecia and what boys and men were specifically experiencing. Frank started the Alopecia Connection podcast earlier this year, and is looking forward to sharing interviews with men and boys, and othe...
S4E2 Bullying: Effective Actions Kids & Parents Can Take at Home & School with Nate Webb
August 25, 2022 07:00 - 31 minutes - 21.6 MBTrigger Warning: We discuss suicide in relationship to bullying within this episode. This is our back to school episode of Alopecia Life. It's the beginning of the school year here in the US, and for many of us around the world. Every year, I hear from parents whose children are new to alopecia. Starting school is a huge topic of discussion in my coaching. Questions like, "How do we share about alopecia in the classroom." and "How do we get the school to allow my child to wear a hat." In ...
S4E1 Welcome Back to Alopecia Life Season 4
August 11, 2022 07:00 - 5 minutes - 3.63 MBWelcome back to Alopecia Life and season 4. It's so great to be back, sharing about topics that are important to those of us living with autoimmune hair loss. I've been on a brief hiatus as I've been working on releasing a course for parents and caregivers of children living with alopecia. If you haven't yet checked out my website https://www.alopecialife.com/, feel free to head on over there to see what it's all about. I'm super excited to release episodes this season. Guests are always ...
S3E20 Taking a Breath & a Short Break
May 12, 2022 07:00 - 1 minute - 1.14 MBWelcome to Alopecia Life. Normally, I would have an episode releasing this week, but I've been so busy with an exciting upcoming project that I decided to take a short break. I want to thank you for listening in as the episodes are released, and look forward to resuming all of this very, very soon. If you are hoping to hear more about a certain topic, a product, or from an amazing person living with alopecia, please let me know by direct messaging me. Support the show Alopecia Life provides...
S3E19 3+ Healthy Habits to Have in Our Lifestyle Toolbelt for Success, with Integrative Nutrition & Gut Health Coach, Lisa Taylor
April 28, 2022 07:00 - 33 minutes - 23.3 MBWelcome to another episode of Alopecia Life with Integrative Nutrition & Gut Health Coach, Lisa Taylor. Last October, Lisa shared about gut makeovers and autoimmunity. Since then, Lisa and I have been wanting to connect again to share some lifestyle tools to add into our healing journey. The importance of self-care is often overlooked as we are going about our busy lives, and Lisa is here again to help us implement healthy habits into our daily routine. Thanks so much for spending your ti...
S3E18 Alopecia Representation with Ayanna Pressley
April 14, 2022 07:00 - 34 minutes - 23.8 MBWelcome to this episode of Alopecia Life.The past few weeks have been ones full of awareness around alopecia areata. It's brought to light more than we ever could have anticipated, especially around the complicated relationship amongst the black community and hair loss. This interview was scheduled months ago to be released today. Our guest deeply connects with the topic with understanding, representation, and also one of passion. Congresswoman Ayanna Pressley is an activist, a legislator, a...
S3E18 Alopecia Representation with Congresswoman, Ayanna Pressley
April 14, 2022 07:00 - 34 minutes - 23.8 MBWelcome to this episode of Alopecia Life.The past few weeks have been ones full of awareness around alopecia areata. It's brought to light more than we ever could have anticipated, especially around the complicated relationship amongst the black community and hair loss. This interview was scheduled months ago to be released today. Our guest deeply connects with the topic with understanding, representation, and also one of passion. Congresswoman Ayanna Pressley is an activist, a legislator, a...
S3E17 How Connecting to Mind, Body & Soul Allows Us to Build Confidence, with Sheridan Ruth
March 31, 2022 07:00 - 25 minutes - 17.5 MBWelcome to this episode of Alopecia Life. Today's guest is Sheridan Ruth. She is both an alopecia coach and yoga therapist, and supports women with alopecia in their journey to feel more self-acceptance, step into their true power, and radiate confidence. Since losing her hair at 7 years old, Sheridan battled self-doubt, anxiety, insecurity, trauma, body image and mental health challenges. For years she felt disconnected from her body and inner wisdom and felt like she was searching for an...
S3E16 Hair or No Hair, with Filmmaker Janessa St. Pierre
March 17, 2022 07:00 - 22 minutes - 15.7 MBThanks for listening to Alopecia Life today. For the past 2 years, the month of March seems to bring an opportunity to share about very cool projects. This year, we have something that is time sensitive, and I wanted to make sure we all had an opportunity to share the project, especially before the end of March. Our guest today is Janessa St. Pierre. Janessa studied Film Studies at Concordia University in 2015 and then transferred to Capilano University for certification in Motion Picture ...
S3E15 How to Make the Most of Your Doctor's Appointment's & Ask For What You Want!
March 10, 2022 08:00 - 39 minutes - 26.9 MBThank you for sharing your time with me and guest, Teresa Younkin today on Alopecia Life. I met Teresa at a conference last year. We were talking about healthcare reform and what she does, and I was super impressed. What started out as personal advocacy for her family has led to something more expansive around healthcare. Teresa is super excited about the health information exchange, and she shares more about that with us today, along with how to ask for what we want to make the most of our ...
S3E15 How to Make the Most of Your Doctor Appointments & Ask For What You Want!
March 10, 2022 08:00 - 39 minutes - 26.9 MBThank you for sharing your time with me and guest, Teresa Younkin today on Alopecia Life. I met Teresa at a conference last year. We were talking about healthcare reform and what she does, and I was super impressed. What started out as personal advocacy for her family has led to something more expansive around healthcare. Teresa is super excited about the health information exchange, and she shares more about that with us today, along with how to ask for what we want to make the most of our ...
S3E14 Building Community One Ponytail At a Time with Chloe's Challenge
February 24, 2022 08:00 - 22 minutes - 15.3 MBWelcome to this episode of Alopecia Life, and for sharing your time with me and our guest, Susan McLemore, today. A couple months ago, I was searching for something on Facebook, and I discovered Susan and a really cool thing she organized. I wanted to find out more, and we were both excited to talk about the community that supported her family after they were diagnosed with alopecia. I hear so often, after children are diagnosed, that parents want to do something, anything really...to suppor...
S3E13 How the Australia Alopecia Areata Foundation Raises Awareness & Supports Their Community
February 10, 2022 08:00 - 39 minutes - 26.9 MBToday, our guest is Chel Campbell, who in 2010 after 12 years of being a parent of a son living with alopecia, led her to create the Australia Alopecia Areata Foundation and build on her passion for unconditional acceptance and appearance diversity. In today's episode, we discuss the how and why behind AAAF, what they are looking to accomplish this year, how they've adjusted their outreach during the pandemic, and how she hopes that one day in the future there won't be a need for the foundat...
S3E12 Newsworthy Alopecia - How Jada Pinkett Smith Illuminated Alopecia
January 27, 2022 08:00 - 9 minutes - 6.8 MBWelcome to this episode of Alopecia Life. A few weeks ago, I wrote an article about Jada Pinkett Smith and submitted it to a couple different news outlets. Although it didn't get picked up, I thought I'd share it with all of you. After writing this article and recording for this episode, I can see that there have now been over 2 million interactions and views on her Instagram post that made the headlines. That is 3 times more than almost any other Instagram post she has had in over a year....
S3E11 Picture Day - Helpful Tools to Make the Most out of School & Sport Photos, with Frank Lombardo & Inter State Studio
January 13, 2022 08:00 - 25 minutes - 17.5 MBWelcome to this episode of Alopecia Life. We have 3 guests here with us today, Frank Lombardo, the National Photography Manager and two of his team, Erin & Steve from Inter-State Studio & Publishing Company. Frank and I connected a few years ago when I was reminded of my own school photo experience after hearing numerous discussions come up about the unpleasantness of school photos. It may be strange to hear how traumatic a school photo can be, especially if your own experience was only one...