AliveandKick'n the podcast
147 episodes - English - Latest episode: 4 days ago - ★★★★ - 7 ratingsThe movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it's like to LIVE in a world with Lynch Syndrome genetic mutations.
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Episodes
AliveAndKickn Podcast - Dr. Asaf Maoz
April 21, 2024 12:25 - 45 minutes - 32.6 MBI sit down with Dr Asaf Maoz, Medical Oncologist at Dana Farber Cancer Institute, who I recently saw at the LynkedIn and Scientific Symposium. We discussed what brought Dr Maoz to this point, discussing immunology, T-cells, receptors and targets. Dr Maoz confirmed that not all Lynch cancers are MSI-H. This year, for the 5 year anniversary of the patient LynkedIn conference, they had the scientific symposium the day before. Dr Michael Foote from MSK presented some data on cancer risk afte...
AliveAndKickn Podcast - Emily Goldberg
March 30, 2024 18:57 - 35 minutes - 23.8 MBI sit down with Emily Goldberg, Genetic Counselor for JScreen. JScreen is a nonprofit that provides cancer genetics testing, but also has a reproductive carrier screening panel. Most patients choose saliva but sometimes blood is chosen by mobile phlebotomy. JScreen which started in Atlanta, provides testing and counseling in all 50 states. Pricing is unique because they are a non-profit. Cancer genetics was launched 3 years ago at JScreen and the numbers have increased dramatically with ...
AliveAndKickn Podcast - Cody Mitchell
March 06, 2024 02:52 - 38 minutes - 27.4 MBBoise Podcast pro Cody Mitchell joined me on the podcast as we talked Lynch Syndrome as she approaches her 4th cancerversary of endometrial cancer. Cody has been able to turn her diagnosis into knowledge and cohesion among her network. Cody is considered de novo as she is the first in the family to have a lynch mutation. Cody's genetic counselor recommended AliveAndKickn and she appreciated that we are living with Lynch, and the information is coming from reliable sources, especially in a...
AliveAndkickn Podcast - Erica Nelson
February 26, 2024 02:53 - 1 hour - 44.7 MBI sit down with the Awkward Angler herself, Erica Nelson, from west of Denver in Crested Butte, Colorado. Erica is a flyfishing guide in the Valley with a Lynch Syndrome story and so much more. Erica also does consulting on diversity, equity and inclusion with her own podcast. The organization Brown Folks Fishing has a number of programs around conservation, but also looking at leadership roles. Angling for All addresses inequality in fishing, talks about reconciling and navigating our o...
AliveAndKickn Podcast - Dianne Hammer
February 18, 2024 23:47 - 47 minutes - 30.7 MBI sit down with Dianne Hammer, who shares her Lynch Syndrome story for the first time on a podcast. Recently diagnosed, Diane is still a previvor, although she found pre-cancer when she had her hysterectomy. She's also unsure which side of her family she inherited her mutation. An avid writer and reader, Diane was also sexually assaulted while working at a bookstore at knifepoint. Although able to fight him off, the person had assaulted others, and eventually caught and put away. Diane ...
AliveAndKickn Podcast - Rachel Travis
February 05, 2024 00:53 - 59 minutes - 43.5 MBI sit down with Rachel Travis, otherwise known as the TattedRayofSunshine. Not only does Rachel have a Lynch Syndrome colorectal and peritoneal cancer story, but also an alcohol, a firearms, a weight, a childhood trauma, rape and more. Rachel hopes that her diagnosis was a wakeup call for others, including her family. Through her faith, she feels she can smile and laugh and get through this, and just about anything else. We're both hopeful for the future.
AliveAndKickn Podcast - Michelle Vina-Baltsas
January 25, 2024 23:19 - 51 minutes - 35 MBI sit down with Michelle Vina-Baltas, who has been having colonoscopies for 20 years, developed skin cancer 12 years ago, but only got tested for Lynch Syndrome recently. Even as a life coach with tools for mitigating it, Michelle still gets a little anxious before screenings. Michelle works with women that struggle with food and body image. Finding balance and a positive relationship with food is difficult for so many of us, including those who have had cancer issues. It all ties into h...
AliveAndKickn Podcast - Amber Eastman
January 08, 2024 01:00 - 45 minutes - 33.2 MBI sit down with Amber Eastman, Lynch Syndrome survivor, and member of the Confederated Tribes of Ronde in Oregon. Amber confirmed with me that women of color face a more difficult challenge in that they are often noit believed, that they're crying wolf when they come to the physician's office. Thankfully, Amber met with a physician who had just attended a lynch syndrome seminar, and she was correctly diagnosed. I love Amber's policy of never a victim, always victorious. Not only did Amber...
AliveAndKickn Podcast - Srinivas Pai
November 21, 2023 18:31 - 33 minutes - 25 MBI sit down with Srinivas Pai, Lynch Syndrome survivor from lots of different places including India, Singapore, Michigan, New York and now Indiana. While of course he has a rectal cancer story, how he and his wife, an Internist herself, managed his treatment in 2012, tells a story itself. We talk about the rectal cancer trial that recently took place roughly 10 years after his own treatment at Memorial Sloan Kettering in New York City. The best thing you can do is share with your family, ...
AliveAndKickn Podcast - Jaystan Davis
November 04, 2023 15:59 - 29 minutes - 21.4 MBI sit down with Jaystan Davis, colon cancer survivor at age 19, as we discuss Lynch Syndrome, basketball, and more. We also talk about how what was originally thought was an infection was actually additional cancers, so being your own advocate is important. His clinical trial of immunotherapy and folfox proved to be effective in treating Jaystan. He did the treatment for 2 years from home, while still being a student. August 2023 was his last treatment and is cancer free. So now what ha...
AliveAndKickn Podcast - Dr Toni Seppala
October 08, 2023 17:06 - 35 minutes - 25.2 MBI sit down with Dr Toni Seppala from Finland, GI surgeon, as we talk Lynch Syndrome and hockey instead of soccer for a change. We talk risk-reducing surgeries, screening intervals, and the debate that continues, especially as it pertains to the different genes within Lynch Syndome. We also discuss the cancer registry system in Finland which has been around since the 50s and the lynch syndrome registry which has also been around for over 40 years. Close to 400 families are in the registry ...
AliveAndKickn Podcast - Erin House
September 25, 2023 17:11 - 33 minutes - 24.7 MBI sit down with Erin House, Lynch Syndrome survivor with a great story, including her running in the NYC marathon on behalf of AliveAndKickn. Erin, originally from Australia, has an interesting story of genetics and international implications. Takeaway is to be your own best advocate and follow your instincts. The Erin House gene is now considered pathogenic in the States as well as in Australia. Erin is setting up a betting pool for her finishing time, so place your bets now on Erin's f...
AliveAndKickn Podcast - Rachelle Manookian
September 04, 2023 15:51 - 35 minutes - 24.5 MBI sit down with Rachelle Manookian, Genetic Counselor at Children's Hospital of LA. We discuss the transition from adult oncology at City of Hope to pediatrics, and the nuances it entails. Rachelle and I originally met when she was a student at Mount Sinai in New York, and she's running the NYC marathon for AliveAndKickn, giving her an excuse to get back to the City. Link to Rachelle's marathon fundraising page is at www.AliveAndKickn.org. We caught up on the good old days at Mount Sinai,...
AliveAndKickn Podcast - Dr Jose Perea Garcia
August 31, 2023 15:43 - 33 minutes - 21.6 MBI talk with Dr Jose Perea Garcia, Digestive Surgeon as well as cancer researcher in Madrid. We talk about how surgery has evolved and management of the Lynch Syndrome patient compared to sporadic cases. We compare some protocols and coverage in the US vs elsewhere such as Spain where there is government run. Urban vs rural is an issue everywhere. I convince Dr Garcia to offer me a ticket to an Atletico Madrid game if I get there, including if they play Real Madrid.
AliveAndKickn Podcast - Dr. Tiago Biachi
August 10, 2023 14:11 - 38 minutes - 20.2 MBI sit down with Dr Tiago Biachi, Medical Oncologist at Moffitt Cancer Center, as we discuss Lynch Syndrome, GI cancers, MSI, immunotherapy and of course soccer including the women's world cup, the pickup game at ASCO which I was not invited to, and more.
AliveAndKickn Podcast - Dr William Karnes
July 11, 2023 16:28 - 36 minutes - 19.1 MBI sit down with Dr William Karnes, Gastroenterologist and Director of High Risk and Colonoscopy Quality at the Digestive Health Institute at UC Irvine Health, as we discuss his accomplishments, including the launch of DocBot. We discuss quality measure indicators and what can and/or should be built into the automation. DocBot, now as part of Satisfai health is about to launch a multi-center study in four different countries.
AliveAndKickn Podcast - Dr Harsha Vyas
June 01, 2023 17:15 - 41 minutes - 25.9 MBI talk community oncology with Dr Harsha Vyas, Oncologist at Cancer Center of Middle Georgia. Dr Vyas is also Advocacy Chair for the Community Oncology Alliance (COA). Belk, Kroger, and WalMart are the centers of the area, so people will come to Dr Vyas and make a day of it while there. Truly appreciate Dr Vyas' perspective on what he sees, as well as his own "why" for becoming an oncologist. It's important to have the family involved if possible to ensure a higher success rate, which is t...
AliveAndKickn Podcast - Brian Kelly
May 26, 2023 02:56 - 43 minutes - 26.4 MBI had a conversation with Brian Kelly, life sciences and diagnostics professional. Brian's career is expansive but working with pharma on advanced diagnostics has been his passion for the last dozen years. Precision therapy is not a simple triangle. A lot of parties are involved. Molecular classification of disease has evolved. MSI, BRAF, KRAS has crossed the silicon valley chasm from early adoptors to main street. The FDA and the other global approval bodies deserve a lot of credit fo...
AliveAndKickn Podcast - Melissa Carr
May 17, 2023 00:03 - 43 minutes - 24.1 MBI talk with Melissa Carr where we talk Lynch Syndrome, meteorology, and how she has dedicated herself to a number of public health initiatives in Wisconsin. We also talk soccer and the Forward Madison (fla)mingos, her team Wildflowers team participation in the Badger Challenge bike ride/run/walk. Melissa is also co-founder of Soles United, a collective of orgs that bring inclusivity to the forefront. Melissa is also Wisconsin chapter lead for Mom's Demand Action trying to protect people f...
AliveAndKickn Podcast - Angela (Shutterdoodles)
May 06, 2023 22:44 - 37 minutes - 21.7 MBI sit down with Angela, psychotherapist in the UK and we talk Lynch Syndrome. Angela went through her cancer journey during Covid, which has its own challenges. We talk about coping with the mental and emotional strain and putting things into place after a medical trauma. We talk toxic positivity and embracing that it's difficult and you're allowed to be human in this space. You'll have to listen to know where shutterdoodles came from.
AliveAndKickn Podcast - Dr Marilena Mela
April 16, 2023 14:34 - 59 minutes - 32.5 MBI talk with Dr Marilena Mela and discuss her scientific evolution to where she is now. Thankfully Dr Mela was exposed to Lynch Syndrome so much that she has focused on molecular genetics. Dr Mela is PhD trained and is taking her board exams in August. We also talk about her role at the New York Genome Center, and her role as a Junior Board Member at the Cancer Genomics Consortium. We talk MSI and TMB, tumor normal sequencing and RNA.
AliveAndKickn Podcast - Shweta Walia
April 07, 2023 17:41 - 41 minutes - 22.7 MBI talk with Shweta Walia, Lynch Syndrome patient from northern India. Shweta has a significant history of cancer in her family, but she is the first to look into genetic testing and do something about it, both for herself and her daughter. I truly admire Shweta for her persistence and her willingness to stand up for her family and herself.
AliveAndKickn Podcast - Dave Helm
April 01, 2023 00:54 - 51 minutes - 26 MBI talk the colonoscopy business with Dave Helm for colon cancer awareness month. We talk about technology upgrades, ASCs, hospitals and more. I shared the story of how my brother and I scheduled our colonoscopies on the same day without telling each other. We also discussed how sharing stories can make a difference in ways and with people that would surprise you. We also discussed Dave and Courtney's SpinTowel business called Drip Accessory, how it got started, and its success, which rem...
AliveAndKickn Podcast - Dr Dana Chase
March 25, 2023 13:00 - 24 minutes - 15.2 MBI sit down with Dr Dana Chase to discuss the role of the Gynecologic Oncologist. Gyn Oncs as they're called frequently, is a labor of love as there's tremendous amount of time and effort put into initially attaining this unique role in the care of women, including those with Lynch Syndrome. We talk ovarian cancer, endometrial cancer, fallopian tubes and more.
AliveAndKickn Podcast - Robert Rikard
March 16, 2023 15:15 - 54 minutes - 28.2 MBTimely conversation with Robert Rikard, Lynch Syndrome survivor and attorney from South Carolina. We talk about survivorship and being positive yet informative. Robert has some real good friends in the right places, as he's still with us after having kidney cancer, as well as colon cancer. Robert and his wife instituted the no "BS" rule in their lives, focusing on the positive, entering mindfulness with meditation. Find some positivity and move forward every day. We also talk social med...
AliveAndKickn Podcast - Hope Lutz Firsel
March 04, 2023 02:39 - 35 minutes - 20.2 MBI sit down with Hope as she shares her Lynch Syndrome story of developing colon cancer in her mid-30s. It goes to show that you should listen to your parents when they're sharing articles with you. It also shows that a good persistent clinician can be a lifesaver. Hope feels so strongly after her experiences that she is giving back to other women who could benefit from her knowledge. Hope considered herself as a fighter when she was in the thick of treatment, but as a thriver now. Also ...
AliveAndKickn Podcast - Carrie Vee
February 06, 2023 19:04 - 33 minutes - 19.7 MBI sit down with Carrie Vee, speaker and author and of course Lynch Syndrome patient. Carrie's history with cancer and her family's history is extensive. She tells her story and is using her voice to make a difference in this hereditary syndrome that is so prevalent but still unknown. Choices have consequences and her desire is to help people choose wisely. Thankfully ice cream fits in the choose wisely category.
AliveAndKickn Podcast - Michaela Marchi
December 31, 2022 18:31 - 53 minutes - 28.6 MBMichaela Marchi shares her Lynch Syndrome story. I truly appreciate her ethnic background, how she approaches life. Michaela uses her art and her song to bring people to a place of cosmic and spiritual beauty. Through all of the cancer and death, she can find peace in her world. Michaela so far is the only guest to quote Dante. Michaela gives her account of how advocacy literally saved her life, helping her to find a clinical trial that cured her. Her spirit animal, the turtle continu...
AliveAndKickn Podcast - Malvina Kefalas
November 19, 2022 17:53 - 48 minutes - 25.2 MBI sit down with Malvina Kefalas, who I first met at the Get Your Rear in Gear New York 5k, and whose mother passed away of colon cancer. Actually I was lying down as I had a bad cold and I sounded. like I was growling. Malvina opens up about how she turned her grief into a mission to make a difference in this space. Malvina talks about how she inherited a CHEK2 mutation as well as a APC VUS from her mother, and is now routinely screened and can be proactive in her care. Malvina has recen...
AliveAndKickn Podcast - Dr Jeffrey Weitzel
November 10, 2022 12:00 - 44 minutes - 27.1 MBTalking everything Lynch Syndrome with Dr Jeffrey Weitzel, board certified Medical Oncologist and Clinical Geneticist who has been a pioneer in the field of hereditary cancer. Dr Weitzel is Vice President Medical Affairs Hereditary Cancer at Natera. Truly engaging conversation with one of the names you think of when you think about hereditary cancer.
AliveAndKickn Podcast - Isaac Ro
October 30, 2022 15:50 - 31 minutes - 18.9 MBAs the summer was ending,I sat down with Isaac Ro, Life Sciences Executive, who I originally met at the Blue Genes Bash several years ago. Isaac left Goldman Sachs for Thrive Early Detection, where Bert Vogelstein and the group were working on liquid biopsy. After Thrive was acquired by Exact Sciences, Isaac left and became CFO at Sema4, which was a company where I worked as well. After taking Sema4 public, Haystack oncology is his newest venture which works on MRD in cancer. We talk dat...
AliveAndKickn Podcast - Travis Mayberry
October 20, 2022 22:53 - 31 minutes - 19.9 MBI sit down with Travis Mayberry, President of Mayberry Memorial. Travis is a MSH2 lynch syndrome previvor. Before his father passed away in 2011, he was an avid BBQ cookoff competitor and for years after, the nonprofit foundation did BBQs as fundraisers. Very similar story to AliveAndKickn, Mayberry has evolved to be a specifically lynch syndrome focused foundation. Mayberry's Project Conquer enables high risk candidates to get scholarships for genetic counseling and genetic testing.
AliveAndKickn Podcast - Dr. Annelie Vogt von Heselholt
October 01, 2022 19:12 - 43 minutes - 25.5 MBI sit down with Dr Annelie Vogt von Heselholt as we talk about green bananas, cancer prevention, diet, Huntsville Alabama, Lynch Syndrome and how the two of us are entwined in all of this.
AliveAndKickn Podcast - Robin Beth Dubin
September 29, 2022 00:17 - 37 minutes - 20 MBI talk with Robin about life with Lynch Syndrome, why we started AliveAndKickn, how it is run and by whom, and what life is like to be caregiver to someone with Lynch as well as to kids as previvors. Robin has the ability to compartmentalize the programming of running the foundation versus the understanding that living with Lynch Syndrome has a number of emotional and physical challenges.
AliveAndKickn Podcast - Eve Brue
July 02, 2022 16:48 - 33 minutes - 20 MBI sit down with Eve Breu as we discuss her lynch syndrome story. Since the podcast was renewed for another season, Eve was willing to come on and talk about her VUS. Eve is a story of persistence in the face of uncertainty, showing that being your own advocate is the best advice. Eve has also participated in the Connect My Variant program. According to Eve, there are a number of folks with the same variant in the same gene but it's still not classified as pathogenic. We also discuss sou...
AliveAndKickn Podcast - Kimmy Niemi
June 17, 2022 02:10 - 41 minutes - 25.2 MBI talk with Kimmy Niemi, Boston based actor and voiceover actor and lynch syndrome cancer survivor. Unlike me, Kimmy didn't do her own narration under anesthesia during her colonoscopy. Since upper endoscopy, I've given up the narration for full anesthesia. Kimmy talks about breaking into show tunes during her MOHS surgery with her physician during her skin carcinoma removal. Kimmy went from musical theatre to music and songwriting, and learning guitar, to acting in TV and movies and nar...
AliveAndKickn Podcast - Joan Rush
June 11, 2022 19:46 - 42 minutes - 24.8 MBI sit down with Joan Rush, Founder of the Jacqueline Rush Foundation. Joan shares the story of how her daughter was misdiagnosed and finally diagnosed at an extremely young age. Joan and her husband Alan are determined to inform the public & medical community about Lynch Syndrome & help people realize the power of knowing what’s in their genes. We talk about immunotherapy, clinical trials, and the potential vaccine. We also talk about what it's like to be involved in the non-profit world...
AliveAndKickn Podcast - Mo Haque (for the 2nd time)
May 22, 2022 19:39 - 36 minutes - 22 MBIn honor of Tottenham's strong finish in the top 4 of the Premier League, Mo Haque is back. For the first time, I have a returning guest to the podcast, having been on previously in 2020. Mo and I celebrate getting older, as he had a much tougher road than me. Thankfully, immunotherapy with Keytruda has allowed Mo to survive and thrive. Mo was in the inaugural Living with Lynch patient workshop, has written a book Choosing to Stay, has done public speaking including stand-up comedy and ...
AliveAndKickn Podcast - Dr Jason Wright
April 19, 2022 00:11 - 36 minutes - 23.6 MBI sit down with Jason Wright, and talk about Lynch Syndrome and gynecological cancers. Columbia's clinical program is a comprehensive center for hereditary abnormalities, including BRCA, Lynch and others. Obviously the goal is to identify those with a variant before they have cancer. There's still a greater awareness of BRCA, even before the Angelina effect. We talk about screening fatigue that can set in over time when you haven't had cancer for a considerable period of time, but you ne...
AliveAndKickn Podcast - Michele Elliott
April 16, 2022 01:15 - 39 minutes - 22.6 MBI sit down, or at least try to sit down with Michele Elliott, the wandering Lynchie. Michele tells her Lynch Syndrome story, but she also tells the story of how she sold her house, and packed up her little dog and decided to live in a camper and spread the word about Lynch Syndrome. Michele also does RV inspections while on the road. Now Michele dons her AliveAndKickn shirt and talks to anyone who wants to know more or what it means.
AlliveAndKickn Podcast -Dr. Sid Yadav
April 05, 2022 01:39 - 41 minutes - 25 MBI sit down with Dr Sid Yadav, Gynecological Oncologist in Women’s Cancer Program who does research in DNA damage repair deficiencies & familial cancers. Dr Yadav talks about a protocol for anyone who has surgery for colon and/or endometrial cancer to have tumor sequencing as well as germline testing. We talk about basket clinical trials that may have taken place before people were being tested for lynch syndrome and how the field of oncology is evolving. I of course want to know once a pe...
AliveAndKickn Podcast - Dr Sid Yadav
April 05, 2022 00:48 - 40 minutes - 24.4 MBI sit down with Dr Sid Yadav, Breast & GYN Oncologist in Women’s Cancer Program who does research in DNA damage repair deficiencies & familial cancers. Dr Yadav talks about a protocol for anyone who has surgery for colon and/or endometrial cancer to have tumor sequencing as well as germline testing. We talk about basket clinical trials that may have taken place before people were being tested for lynch syndrome and how the field of oncology is evolving. I of course want to know once a per...
AliveAndKickn Podcast - Angela Ross
March 26, 2022 19:41 - 38 minutes - 23.3 MBI sit down with Angela Ross, Genetic Counselor who sees a number of Lynch Syndrome patients at Memorial Sloan Kettering. MSK has created a program called MSK Catch, a clinical care program for people with hereditary cancer syndromes. They are collaborating with Hackensack Meridian and others that are MSK approved for those outside of Manhattan, namely north Jersey. Angie also discusses the Impact protocol of assessing the tumor genetically, as well as the germline. Angie says I'm not scr...
AliveAndKickn Podcast - Kory Jasperson
March 22, 2022 01:36 - 35 minutes - 21.5 MBI sit down with Kory Jasperson, Genetic Counselor who has focused on Lynch Syndrome and colon cancer for about 15 years. Kory is seeing the new model of the remote genetic counseling and how it is playing out, well before Covid. Are we getting closer to screening more of the general population? Almost. New and efficient strategies moving forward will be needed to effectively identify, educate, and empower patients. We're building the train as it's chugging along the tracks.
AliveAndKickn Podcast - Leon Squadrito
March 18, 2022 00:52 - 36 minutes - 21.2 MBI sit down with Leon Squadrito, husband to Melissa Squadrito, who passed away recently. Melissa, who had Lynch Syndrome, was previously on the podcast in November 2020, then as a previvor, but developed soft tissue sarcoma, a rare cancer. Leon talks about their lives together, including the tough part of watching her go through so much, but also the effect that Melissa had on her patients as a Nurse Practitioner and as a donor.
AliveAndKickn Podcast - Pat Fahey
March 13, 2022 01:14 - 52 minutes - 31.2 MBI sit down with my cousin from another mother Pat Fahey, founder of Lynch Syndrome Ireland. Pat talks about his long lost sister in the States and her history with cancer and how she found him. Pat talks about why he started LS Ireland and his associate Roberta Horgan. So while Pat will claim he's not as eloquent as Sir John or Ian Frayling, he certainly has a way of explaining Lynch Syndrome in such as fashion that anyone can understand. Apparently my ice cream habit is well known acros...
AliveAndKickn Podcast - Sam Alexandra Rose
March 12, 2022 22:23 - 33 minutes - 19.6 MBI sit down with Sam Alexandra Rose, Lynch Syndrome survivor and self-publilshed author of Gut Feelings, Coping with Cancer and Living with Lynch Syndrome. Sam has CMMRD, as both of Sam's parents have Lynch Syndrome and she has inherited it from both. Sam's brother was 16 when he passed away from a brain tumor, but also a sister who did not inherit a mutation from either parent. Sam is doing her PhD around cancer as well.
AliveAndKickn Podcast - Amanda Boitnott
March 10, 2022 01:43 - 30 minutes - 18.2 MBI sit down with Amanda Boitnott, as we discuss her family's extensive history with Lynch Syndrome and cancer, but also previvorship for extended periods for several members of her familly. Our families have taken similar approaches to discussing and sharing and setting the example. We also talk Yellowstone, ranching, and life with massive lapdogs Hobbes and Zeus. Amanda and her daughter both have AliveAndKickn tattoos, which is awesomely cool, but also a great conversation starter.
AliveAndKickn Podcast - Margaret Hitchcock
March 05, 2022 19:30 - 43 minutes - 24.8 MBI sit down with Margaret Hitchcock, virologist, Lynch Syndrome patient, and Vice President of the California Colorectal Cancer Coalition. Melanoma and Triple Negative Breast Cancer survivor and we discuss celebrating cancerversaries and what it's like to be a survivor, knowing there's a distinct possibility, if not likelihood, there will be at least once reoccurrence. Margaret talks about her extensive family history of cancer, and not your typical ones. Since 2006, Margaret's C4 group d...
AliveAndKickn Podcast - Kelly Ann Giggler
March 05, 2022 18:43 - 52 minutes - 31.2 MBI sit down with Kelly Ann Giggler, Lynch Syndrome previvor and photographer for ESPN. We discuss rubber ducks, peaches, Peloton, and her family's extensive medical history, including negative testing for BRCA. We also talk about our mutual admiration for Dr Xavier Llor at Yale. Kelly Anne received 4 out of 5 stars on Yelp for how clean her first colonoscopy. We also talk about the celebritizing of Lynch Syndrome in order to get the word out more.