Educating Yourself with Joan Rodriguez, Part II
3 Black Docs
English - April 06, 2021 07:00 - 32 minutes - 29.3 MBMedicine Health & Fitness Society & Culture poc led medicine oncologists women doctors poc women led oncology women african american black Homepage Download Google Podcasts Overcast Castro Pocket Casts RSS feed
We are continuing our conversation with Ms. Joan Rodriguez as our patient advocate for Mutiple Myeloma Awareness Month! She was such a powerhouse and had so many #gems to share with us about her journey with Multiple Myeloma. Ms. Joan says "Educating yourself is empowering" and she exemplifies this concept with her own story.
Joan Rodriguez is a native Bostonian. In 2003, she was diagnosed with MGUS and had progressive neuropathy. After a less than pleasant experience with one doctor, she switched to another who honored her request to never discuss her charts with the previous physician. After initial rounds of treatments, she started to get better and her symptoms decreased so that she was able to progress from using a walker to a cane, but the neuropathy never went away completely and she still has numbness in her feet. In 2016, she progressed to Smoldering Myeloma with markers qualifying her to be high risk.
She joined a clinical trial and a myeloma support group at Dana Farber. She is a participant of the Promise Study and will be participating in a future PSA with them.
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